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Off Topic :
SI Prayers/Mojo Request...Cancer

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nekorb ( Member #40306) posted at 1:14 PM on Sunday, September 18th, 2016

Keeping you both in my thoughts and prayers.

Rest when you need to and make sure your team knows about side effects so they can offer relief if it's available.

I'm so impressed that your still at work!! You go girl. And then you stop girl, when you need to, and let people help you.

(((DS&MH)))

Me: BS 44; Him: WH 47 M - 22 Years
D-day: 7/2013; D filed 7/2014; Divorced 7-27-16
...the WS affair starts off in a dreamland where everything is all Golly, Wow! and Meant To Be! and Soul Mates drop from the trees to frolic in the mist. -devotedman

posts: 5695   ·   registered: Aug. 13th, 2013
id 7663837
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 Deeply Scared (original poster Administrator #2) posted at 3:31 PM on Sunday, September 18th, 2016

I wanted to update this thread. But I went to bed than fell asleep due to the pain medication I took.

Thank you all for your continue love and support!

Friday I had to have another blood transfusion (2nd one in 2 months) due to the blood panel numbers being low. My legs and ankles were so swollen and skin so tight it felt like my skin was going to tear open

So all day Friday, I laid in a bed while 2 pints of someone else's blood was pumped in to me. I kept praying that I hope there were a nice person and not some crazy animal abuser

My oncologists are taking me off chemo because the drugs are just too strong from my healthy blood to repair itself from. My numbers are constantly low, my kidneys are having to work over time and overall my cancer is just not responding to the chemo.

The good news is even though the tumors have gotten bigger...they still haven't spread!! Praise God! So now we're off to the main campus at MD Anderson for the next month with various appointments to get me on the trial drugs. Which includes another biopsy...which I swear to God hurt more than anything I've been through so far, so I'm really not looking forward to that procedure.

Once they find a trial drug that matches up with my cancer then the new testing begins. I should probably now in about 3-4 weeks when I'll be starting.

My eyelashes are gone...my eyebrows are gone and I have a little bit of peach fuzz on my head I have pain 24/7 and I bruise so easily now, it's just awful. Poor MH....he listens to me moan at night I know it's just killing him

Overall, if I didn't have this pain, I wouldn't remember half the time I have cancer because I feel good, but the pain is a constant reminder of this fucking disease living inside me that wants to kill me. I hate it.

So there's my update...not bad but not great either. Just plugging on along and praying that something, somewhere will knock this out of me

I forgot....

AK47 This Shit!!!!!

[This message edited by SI Staff at 10:11 AM, September 18th (Sunday)]

"Don't give up, the beginning is always the hardest." My Mom:)

My tolerance for stupid shit is getting less and less.

posts: 210060   ·   registered: May. 31st, 2002
id 7663917
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DragnHeart ( Member #32122) posted at 3:56 PM on Sunday, September 18th, 2016

My dear DS I'm praying this gets better sooner than later. You are handling it so well and I'm sure that is coming across in helping you AK47 this shit. Much love and prayers and hugs for both if you.

Me: BS 44 nowWH: 35 almost 36 (BrokenHeart911)Four little dragons.Met 2006. Married 2008. Dday of LTPA with co worker October 19th 2010. Knew about EA with ow1 before that.Full disclosure March 8th 2019 four AP's.

posts: 21887   ·   registered: May. 10th, 2011   ·   location: Canada
id 7663929
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2oldforthis ( Member #19825) posted at 4:55 PM on Sunday, September 18th, 2016

Lots of hugs and prayers for you as you continue on, you are so strong. I wish we could some how take that pain away.

He did not see what he had in me, what I saw in him I did not have!

Love kills slowly.

posts: 1790   ·   registered: Jun. 10th, 2008
id 7663961
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looking forward ( Member #25238) posted at 4:59 PM on Sunday, September 18th, 2016

Prayers from both my H and me, DS.

You are a strong lady!

(((hugs))))

Together 53+ years, Married 49 years. Sober since 2009. "You've always had the power, my dear, you just had to learn it for yourself." (The Wizard of Oz)

posts: 3588   ·   registered: Aug. 20th, 2009   ·   location: Where a river runs through it 🇨🇦
id 7663965
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JanetS ( Member #2766) posted at 7:10 PM on Sunday, September 18th, 2016

Don't you just wish they could put you into an induced coma while the painful stuff is happening, and wake you up when the treatment is finished!

I'm sorry you're feeling so poorly. You'll have to soldier on.

You're in my prayers.

posts: 3077   ·   registered: Nov. 25th, 2003   ·   location: Niagara-on-the-Lake, Canada
id 7664039
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devasted30 ( Member #39439) posted at 7:52 PM on Sunday, September 18th, 2016

((((DS)))) ((((MH))))

And remember Murphy is right. Nothing is so bad that it can't get worse!!!

posts: 1922   ·   registered: Jun. 4th, 2013   ·   location: Ontario, Canada
id 7664051
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somanyyears ( Member #26970) posted at 8:23 PM on Sunday, September 18th, 2016

..sending you ALL the MOJO I can muster!!!!

..has there been anyone, doctor? friend? or neighbour? to suggest using a wee bit of pot to assist with the pain??

..not sure how that goes over with law enforcement.. can your docs prescribe??

so very sorry to know that you are dealing with this 'pain in the arse disease'!!!

..and 'think positive' ++++++++++++

smy

trust no other human- love only your pets. Reconciled I think!
Me 74 Her 70 Married 49 yrs. 18 yr LTA with bff/lawyer. Little fucker died at 57.Brain tumor!

posts: 5967   ·   registered: Dec. 29th, 2009   ·   location: Ontario Canada
id 7664058
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InnerLight ( Member #19946) posted at 9:00 PM on Sunday, September 18th, 2016

Sending prayers your way.

(((DS)))

BS, 59 years
D-day 6-2-08
D after 20 years
The journey from Armageddon to Amazing Life happens one step at a time. Don't ever give up!

posts: 6685   ·   registered: Jun. 20th, 2008   ·   location: Rural California
id 7664075
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imagoodwitch ( Member #23375) posted at 9:35 PM on Sunday, September 18th, 2016

It makes me sad that you are in pain.

It also makes me sad that the protocol for your tumors isn't working

I'm with smy, I wonder if a little pot might help with the pain.

Hugs and mojo for you and MH

Ordinary average everyday sane psycho super goddess

posts: 6902   ·   registered: Mar. 25th, 2009   ·   location: Munchkinland
id 7664092
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sisoon ( Guide #31240) posted at 10:32 PM on Sunday, September 18th, 2016

Thanks for the update. I'm sorry you're in pain.

As always, sending mojo for your healing.

fBH (me) - on d-day: 66, Married 43, together 45, same sex ap
DDay - 12/22/2010
Recover'd and R'ed
You don't have to like your boundaries. You just have to set and enforce them.

posts: 26010   ·   registered: Feb. 18th, 2011   ·   location: Illinois
id 7664128
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cass ( Member #24261) posted at 11:24 PM on Sunday, September 18th, 2016

Are there other options for pain relief DS? I'm so sorry you are in such pain, that must be making this so much harder for you.

Sending so much continued love, support and strong healing vibes to you and MH from across the pond. Hang in there and keep up your battling spirit.

((((DS & MH))))

DDay - April 2008
Me - 58 and doing great, alone.

Don't put the key to your happiness in someone else's pocket!

posts: 5184   ·   registered: Jun. 4th, 2009   ·   location: Scotland
id 7664162
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Lovingmyselfmore ( Member #46119) posted at 7:10 AM on Monday, September 19th, 2016

((((DS and MH)))))

You are in my prayers. You are doing so well DS., God Bless you.

dday: september-12-2014
Me: 42 EX: 46 gay or bisexual (go figure!) together: 12 years
Dday to 3 months: suicidal 1 year after: huge depression- 1.5 years still kind of depressed-Took me 2.5 years to be kind of happy again

posts: 1076   ·   registered: Dec. 29th, 2014
id 7664388
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Catwoman ( Member #1330) posted at 1:05 PM on Monday, September 19th, 2016

Sending all possible love and prayers for a complete recovery.

Here's hoping they find just the right recipe to shrink the tumors!

Covering you in love and peace and prayer, dear friend.

Cat

FBS: Married 20 years, 2 daughters 27 and 24. Divorced by the grace of GOD.
D-Days: 2/23/93; 10/11/97; 3/5/03
Ex & OW Broke up 12-10
"An erection does not count as personal growth."

posts: 32938   ·   registered: Apr. 5th, 2003   ·   location: Massachusetts
id 7664486
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gypsybird87 ( Member #39193) posted at 12:13 AM on Tuesday, September 20th, 2016

DS,

I'm barely here anymore but a little birdy named MOS reminded of this epic battle you are fighting.

Sending you and MH every bit of love, courage, strength and MOJO I possess. Cancer is so horrible but I know that if ANYONE can beat it, it's YOU! Hang in there.

#AK47ThisShit

Me: Enjoying life
Him: Someone else's problem

Follow your heart, but take your brain with you. ~ Alfred Adler
Letting go of the outcome is about the most empowering thing you can do for yourself. ~ LosferWords

posts: 1857   ·   registered: May. 7th, 2013   ·   location: Oregon
id 7665079
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lieshurt ( Moderator #14003) posted at 12:53 AM on Tuesday, September 20th, 2016

main campus at MD Anderson for the next month with various appointments to get me on the trial drugs.

If anybody can do it, they can. (((DS&MH)))

No one changes unless they want to. Not if you beg them. Not if you shame them. Not if you use reason, emotion, or tough love. There is only one thing that makes someone change: their own realization that they need to.

posts: 22322   ·   registered: Mar. 20th, 2007   ·   location: Houston
id 7665105
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nekorb ( Member #40306) posted at 5:58 AM on Tuesday, September 20th, 2016

I'm so sorry to hear that your pain control isn't adequate. Please bring it up with your team and make sure that they know you aren't getting relief with the current regimen.

Sending prayers and strength to you both. I vote you ask them to drug you up for the biopsy. Can't hurt to ask.

(((DS&MH)))

Me: BS 44; Him: WH 47 M - 22 Years
D-day: 7/2013; D filed 7/2014; Divorced 7-27-16
...the WS affair starts off in a dreamland where everything is all Golly, Wow! and Meant To Be! and Soul Mates drop from the trees to frolic in the mist. -devotedman

posts: 5695   ·   registered: Aug. 13th, 2013
id 7665283
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tushnurse ( Member #21101) posted at 1:31 PM on Tuesday, September 20th, 2016

((((DS))))

Be sure to tell the Dr's your feelings on the biopsy. They can give you happy meds to make you not remember or be aware of what happens.

Me: FBS
Him: FWS
Kids: 21 &23
Married for 28 years now, was 16 at the time.
D-Day Sept 26 2008
R'd in about 2 years. Old Vet now.

posts: 18936   ·   registered: Oct. 1st, 2008   ·   location: St. Louis
id 7665408
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windows ( Member #14054) posted at 2:14 PM on Tuesday, September 20th, 2016

I am praying for you.

posts: 445   ·   registered: Mar. 24th, 2007
id 7665441
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Pentup ( Member #20563) posted at 2:29 PM on Tuesday, September 20th, 2016

So wish I could be close by to give you a hug, buy MH a beer or tequila shot and to ramp up your Docs on your pain meds.

About the blood transfusion, I will hazard a guess that super mean animal abusers aren't the type to take time out of their day to donate blood. I think ou can be confident that it was someone who donates thinking about the people who have done the same for their family and sending good vibes to whoever is receiving it.

Prayers going up for you each day. You hang tough and you blow the everlasting shit out of those tumors. Ak47 style.

Me- BS
Him- FWS (I hope- F)

posts: 8410   ·   registered: Aug. 8th, 2008   ·   location: Not Oz
id 7665454
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