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devasted30

And remember Murphy is right. Nothing is so bad that it can't get worse!!!

Non Hodgkins Lymphoma

Good Morning
I don’t post here often and I’m sorry to be doing so now, but I don’t know where to turn or who to talk to.
I was diagnosed with Non Hodgkins Lymphoma a few months ago and started chemo treatments in August.
I receive 2 treatments on Monday and one treatment on Tuesday. I feel pretty good those days, but by Wednesday afternoon, I am really starting to feel lousy. Anyone I had talked to, who has had chemo, tells me that they felt lousy, nauseous etc., but no one ever said how horrible they felt. I, actually, felt like I was going to die and I cannot express, in words, what it was exactly I was feeling. I felt like my body was vibrating and nauseous but no pain. Constipation was an issue for me the first session and I ended up in the ER twice, but I think I’ve got a handle on that now.
I am on Bendamustine and riTuximab. I was scheduled for 6 treatments…4 weeks apart. After that, immunotherapy every 3 months for another 2 years. It is not curable, but they are hoping to put it in remission.
I cannot believe how tired I am. Nausea isn’t too bad, but the overall tiredness is difficult. I am suppose to get 30 minutes of exercise, but just walking through the house (small townhouse) exhausts me.
Has anyone gone through this? Is this unusual? When I questioned a friend, regarding her symptoms, she told me she downplayed it because she didn’t want to scare me.
Was I naive thinking I could breeze through this? I am scared and not sure I can continue treatment. Am I just being a wussy?
Any help or suggestions would be greatly appreciated.
Thank you.

15 comments posted: Sunday, October 8th, 2023

Stick Vacuums

I am fed up tripping over vacuum cords and long hoses. So, I’ve decided to blow the budget and get a Dyson V10 Animal Stick vacuum. But, before I do, I just thought I’d ask if anyone has used these before and if they have any recommendations…..or if they think it’s a bad idea.
Thanks everyone.

8 comments posted: Friday, July 8th, 2022

t/j which one is it?

Okay, I am stealing a thought from lynnm1947, but here goes

Coke or Pepsi

Coffee or tea

Red wine or white

For me:

Coke

A cuppa tea, then 2-3 cups of Hazelnut Vanilla coffee

Red wine

[This message edited by devasted30 at 6:08 AM, December 17th (Wednesday)]

21 comments posted: Wednesday, December 17th, 2014

Is it?????

0 comment posted: Thursday, October 23rd, 2014

One More Day!!!!

0 comment posted: Thursday, October 9th, 2014

Hump Day

4 comments posted: Wednesday, October 8th, 2014

Book recommendations please

I posted on a different thread here, but I thought I'd try a separate post.

I am finally able to read again. I love reading but over the past 20 months, I have been unable to concentrate. It looks like I can now, so I was wondering if you all could recommend some good book. I just finished Mr Mercedes, by Stephen King, which was very good. I love it when he sticks to semi-normal stuff. He does it so well. But, I love all kinds of books. Fiction is my favourite. So, without further ado, has anyone read any great books lately???

6 comments posted: Saturday, September 27th, 2014

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