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SI Prayers/Mojo Request...Cancer

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nekorb posted 9/18/2016 07:14 AM

Keeping you both in my thoughts and prayers.

Rest when you need to and make sure your team knows about side effects so they can offer relief if it's available.

I'm so impressed that your still at work!! You go girl. And then you stop girl, when you need to, and let people help you.

(((DS&MH)))

Deeply Scared posted 9/18/2016 09:31 AM

I wanted to update this thread. But I went to bed than fell asleep due to the pain medication I took.

Thank you all for your continue love and support!

Friday I had to have another blood transfusion (2nd one in 2 months) due to the blood panel numbers being low. My legs and ankles were so swollen and skin so tight it felt like my skin was going to tear open

So all day Friday, I laid in a bed while 2 pints of someone else's blood was pumped in to me. I kept praying that I hope there were a nice person and not some crazy animal abuser

My oncologists are taking me off chemo because the drugs are just too strong from my healthy blood to repair itself from. My numbers are constantly low, my kidneys are having to work over time and overall my cancer is just not responding to the chemo.

The good news is even though the tumors have gotten bigger...they still haven't spread!! Praise God! So now we're off to the main campus at MD Anderson for the next month with various appointments to get me on the trial drugs. Which includes another biopsy...which I swear to God hurt more than anything I've been through so far, so I'm really not looking forward to that procedure.

Once they find a trial drug that matches up with my cancer then the new testing begins. I should probably now in about 3-4 weeks when I'll be starting.

My eyelashes are gone...my eyebrows are gone and I have a little bit of peach fuzz on my head I have pain 24/7 and I bruise so easily now, it's just awful. Poor MH....he listens to me moan at night I know it's just killing him

Overall, if I didn't have this pain, I wouldn't remember half the time I have cancer because I feel good, but the pain is a constant reminder of this fucking disease living inside me that wants to kill me. I hate it.

So there's my update...not bad but not great either. Just plugging on along and praying that something, somewhere will knock this out of me

I forgot....

AK47 This Shit!!!!!

[This message edited by SI Staff at 10:11 AM, September 18th (Sunday)]

DragnHeart posted 9/18/2016 09:56 AM

My dear DS I'm praying this gets better sooner than later. You are handling it so well and I'm sure that is coming across in helping you AK47 this shit. Much love and prayers and hugs for both if you.

2oldforthis posted 9/18/2016 10:55 AM

Lots of hugs and prayers for you as you continue on, you are so strong. I wish we could some how take that pain away.

looking forward posted 9/18/2016 10:59 AM

Prayers from both my H and me, DS.
You are a strong lady!
(((hugs))))

JanetS posted 9/18/2016 13:10 PM

Don't you just wish they could put you into an induced coma while the painful stuff is happening, and wake you up when the treatment is finished!

I'm sorry you're feeling so poorly. You'll have to soldier on.

You're in my prayers.

devasted30 posted 9/18/2016 13:52 PM

((((DS)))) ((((MH))))

somanyyears posted 9/18/2016 14:23 PM


..sending you ALL the MOJO I can muster!!!!

..has there been anyone, doctor? friend? or neighbour? to suggest using a wee bit of pot to assist with the pain??

..not sure how that goes over with law enforcement.. can your docs prescribe??

so very sorry to know that you are dealing with this 'pain in the arse disease'!!!

..and 'think positive' ++++++++++++

smy

InnerLight posted 9/18/2016 15:00 PM

Sending prayers your way.
(((DS)))

imagoodwitch posted 9/18/2016 15:35 PM

It makes me sad that you are in pain.

It also makes me sad that the protocol for your tumors isn't working

I'm with smy, I wonder if a little pot might help with the pain.

Hugs and mojo for you and MH

sisoon posted 9/18/2016 16:32 PM

Thanks for the update. I'm sorry you're in pain.

As always, sending mojo for your healing.

cass posted 9/18/2016 17:24 PM

Are there other options for pain relief DS? I'm so sorry you are in such pain, that must be making this so much harder for you.

Sending so much continued love, support and strong healing vibes to you and MH from across the pond. Hang in there and keep up your battling spirit.

((((DS & MH))))

Lovingmyselfmore posted 9/19/2016 01:10 AM

((((DS and MH)))))

You are in my prayers. You are doing so well DS., God Bless you.

Catwoman posted 9/19/2016 07:05 AM

Sending all possible love and prayers for a complete recovery.

Here's hoping they find just the right recipe to shrink the tumors!

Covering you in love and peace and prayer, dear friend.

Cat

gypsybird87 posted 9/19/2016 18:13 PM

DS,

I'm barely here anymore but a little birdy named MOS reminded of this epic battle you are fighting.

Sending you and MH every bit of love, courage, strength and MOJO I possess. Cancer is so horrible but I know that if ANYONE can beat it, it's YOU! Hang in there.

#AK47ThisShit

lieshurt posted 9/19/2016 18:53 PM

main campus at MD Anderson for the next month with various appointments to get me on the trial drugs.

If anybody can do it, they can. (((DS&MH)))

nekorb posted 9/19/2016 23:58 PM

I'm so sorry to hear that your pain control isn't adequate. Please bring it up with your team and make sure that they know you aren't getting relief with the current regimen.

Sending prayers and strength to you both. I vote you ask them to drug you up for the biopsy. Can't hurt to ask.

(((DS&MH)))

tushnurse posted 9/20/2016 07:31 AM

((((DS))))

Be sure to tell the Dr's your feelings on the biopsy. They can give you happy meds to make you not remember or be aware of what happens.

windows posted 9/20/2016 08:14 AM

I am praying for you.

Pentup posted 9/20/2016 08:29 AM

So wish I could be close by to give you a hug, buy MH a beer or tequila shot and to ramp up your Docs on your pain meds.

About the blood transfusion, I will hazard a guess that super mean animal abusers aren't the type to take time out of their day to donate blood. I think ou can be confident that it was someone who donates thinking about the people who have done the same for their family and sending good vibes to whoever is receiving it.

Prayers going up for you each day. You hang tough and you blow the everlasting shit out of those tumors. Ak47 style.

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