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A new worry

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sisoon ( Moderator #31240) posted at 9:44 PM on Thursday, June 10th, 2021

Thanks for the update. I'm really sorry the pain has been so great.

fBH (me) - on d-day: 66, Married 43, together 45, same sex apDDay - 12/22/2010Recover'd and R'edYou don't have to like your boundaries. You just have to set and enforce them.

posts: 31110   ·   registered: Feb. 18th, 2011   ·   location: Illinois
id 8666471
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WhoTheBleep ( member #49504) posted at 11:08 PM on Thursday, June 10th, 2021

I'm so sorry about the pain, but I'm glad you got the surgery, and are on the other side.

Keep resting, take things slowly. I'm so glad you are improving.

I believe we have two lives: the one we learn with, and the one we live with after that. --The Natural

posts: 4526   ·   registered: Sep. 6th, 2015   ·   location: USA
id 8666496
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Lionne ( member #25560) posted at 1:02 AM on Friday, June 11th, 2021

I too am thinking of you and sending love and prayers...

Me-BS-71 in May HIM-SAFWH-74 I just wanted a normal life.Normal trauma would have been appreciated.

posts: 8533   ·   registered: Sep. 18th, 2009   ·   location: In my head
id 8666533
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BearlyBreathing ( member #55075) posted at 3:33 AM on Friday, June 11th, 2021

Sorry you are in such pain but glad you are up and about. (((Hugs))) <<— very gentle ones

Me: BS 57 (49 on d-day)Him: *who cares ;-) *. D-Day 8/15/2016 LTA. Kinda liking my new life :-)

**horrible typist, lots of edits to correct. :-/ **

posts: 6482   ·   registered: Sep. 10th, 2016   ·   location: Northern CA
id 8666558
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number4 ( member #62204) posted at 3:57 AM on Friday, June 11th, 2021

So sorry to hear it's been so difficult. But remember, you've taken the first step of restoring your health and taken care of yourself in the process.

Vent here as much as you need to, and as often as you need to.

Me: BWHim: WHMarried - 30+ yearsTwo adult daughters1st affair: 2005-20072nd-4th affairs: 2016-2017Many assessments/polygraph: no sex addictionStatus: R

posts: 1433   ·   registered: Jan. 10th, 2018   ·   location: New England
id 8666560
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 Jeaniegirl (original poster member #6370) posted at 10:30 PM on Friday, June 11th, 2021

Pain worth it.

Just got the call from the surgeon's office. The lab reports show I am cancer FREE. They had sent off the top 40% of my lung as well as some margain areas on second lobe - to the lab - to be checked. The lymph nodes were cleared just prior to surgery.

Now for CT scans, medications and rehab.

"Because I deserve better"

posts: 3731   ·   registered: Feb. 1st, 2005
id 8666853
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zebra25 ( member #29431) posted at 11:07 PM on Friday, June 11th, 2021

That is fantastic news!!!! So happy for you!!

"Don't let anyone who hasn't been in your shoes tell you how to tie your laces."

D-day April 2010

posts: 3712   ·   registered: Aug. 25th, 2010
id 8666862
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number4 ( member #62204) posted at 3:34 AM on Saturday, June 12th, 2021

Oh, SOOO totally worth it! You must be so relieved. Now you can think about healing not just your body, but your mind.

Me: BWHim: WHMarried - 30+ yearsTwo adult daughters1st affair: 2005-20072nd-4th affairs: 2016-2017Many assessments/polygraph: no sex addictionStatus: R

posts: 1433   ·   registered: Jan. 10th, 2018   ·   location: New England
id 8666896
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 Jeaniegirl (original poster member #6370) posted at 5:23 AM on Saturday, June 12th, 2021

I have two home health care nurses. One is RN and I like him. I can tell he knows what he's doing. He's also a wound specialist and will help with that as the incision on my back is massive. He told me his sister had the same type of surgery one year ago so he understand the pain. He says she is just now getting all her strength back. At least he's not sugar-coating anything. One day I feel decent, the next day (like today), I just want to stay in bed but I know I cannot. A new pain area today is my ribs, which really hurt. Another bad pain area is like a burning inside my right breast. Feels like it's on fire.

"Because I deserve better"

posts: 3731   ·   registered: Feb. 1st, 2005
id 8666901
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Countingsheep65 ( member #56000) posted at 6:30 AM on Saturday, June 12th, 2021

Good to hear it’s getting a little better, just take one day at a time.

posts: 452   ·   registered: Nov. 11th, 2016
id 8666906
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BraveSirRobin ( member #69242) posted at 12:59 PM on Saturday, June 12th, 2021

It sucks to have to be a fighter, even when you're good at it. I'm so thankful the results proved worth the pain!

WW/BW

posts: 3724   ·   registered: Dec. 27th, 2018
id 8666926
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DragnHeart ( member #32122) posted at 3:31 PM on Saturday, June 12th, 2021

Are they managing your pain better at home?

How are you sleeping? Are you getting rest?

Me: BS 46 WH: 37 (BrokenHeart911)Four little dragons. Met 2006. Married 2008. Dday of LTPA with co worker October 19th 2010. Knew about EA with ow1 before that. Now up to PA #5. Serial fucking Cheater.

posts: 25896   ·   registered: May. 10th, 2011   ·   location: Canada
id 8666961
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BearlyBreathing ( member #55075) posted at 4:07 PM on Saturday, June 12th, 2021

Glad to hear the great test results . One day at a time to heal, and I do hope the pain diminishes soon.

[This message edited by BearlyBreathing at 10:07 AM, June 12th, 2021 (Saturday)]

Me: BS 57 (49 on d-day)Him: *who cares ;-) *. D-Day 8/15/2016 LTA. Kinda liking my new life :-)

**horrible typist, lots of edits to correct. :-/ **

posts: 6482   ·   registered: Sep. 10th, 2016   ·   location: Northern CA
id 8666966
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 Jeaniegirl (original poster member #6370) posted at 4:35 PM on Tuesday, June 15th, 2021

I am not doing great but I know it takes time. I am 11 days post-op and still having a lot of pain. I'm trying to do everything right. Truly feel as if I've been gutted at can't imagine getting back to my old self. I guess this is a normal feeling. Taste and smell - everything tastes and smells like the hospital, which makes my stomach turn and I get dry heaves, which causes more pain.

Just wanted to let you all know I am still alive and fighting.

"Because I deserve better"

posts: 3731   ·   registered: Feb. 1st, 2005
id 8667518
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DragnHeart ( member #32122) posted at 7:50 PM on Tuesday, June 15th, 2021

Thank you for checking in.

Im sorry its still so painful. Are you on pain medication?

Gentle hugs. You are doing great. One day at a time ok.

Me: BS 46 WH: 37 (BrokenHeart911)Four little dragons. Met 2006. Married 2008. Dday of LTPA with co worker October 19th 2010. Knew about EA with ow1 before that. Now up to PA #5. Serial fucking Cheater.

posts: 25896   ·   registered: May. 10th, 2011   ·   location: Canada
id 8667588
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zebra25 ( member #29431) posted at 10:45 PM on Tuesday, June 15th, 2021

Baby steps. You will get there.

Strength and speedy healing mojo.

"Don't let anyone who hasn't been in your shoes tell you how to tie your laces."

D-day April 2010

posts: 3712   ·   registered: Aug. 25th, 2010
id 8667642
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tushnurse ( member #21101) posted at 11:02 PM on Tuesday, June 15th, 2021

 Truly feel as if I've been gutted

Um....thats cause you have.

If they aren't giving you anything specific for nerve pain ask for it. Gabapentin is appropriate for you and may increase your quality of life right now.

As far as eating and appetite go its normal to not want to eat and things not tasting right. This is where protein shakes come in. Make sure you are drinking a high quality one a couple times a day. You can also get a powder to add to water called Juven. It has all kinds of goodies in it and was developed to help people heal from surgeries. Its expensive but if you aren't eating may be worth it. At least for a couple weekS. In addition eggs. They are protein bombs. Easy to eat easy to digest. Small volume and easy to make. Good fats are important right now too.

Try not to overdo on good days. In q few weeks you will start to feel human again. Glad you got a nurse that knows that nasty wound too. It can be a real bitch to heal.

Congratulations on the clear margins and being cancer free!!!!

Me: FBSHim: FWSKids: 23 & 27 Married for 32 years now, was 16 at the time.D-Day Sept 26 2008R'd in about 2 years. Old Vet now.

posts: 20380   ·   registered: Oct. 1st, 2008   ·   location: St. Louis
id 8667646
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 Jeaniegirl (original poster member #6370) posted at 3:35 AM on Wednesday, June 16th, 2021

Thank you, Tushnurse. The paid meds are Oxy5 and very few of those. They want me to supplement those with Tylenol even though I told them I've never been able to take Tylenol. I feel like the lung is even losse and moving around - but surely it can't be. It hurts. My blood is having to be checked every three days because of the blood thining meds. Just too much. I try to eat but the smell of food gives me the dry heaves. I'm drinking water.

"Because I deserve better"

posts: 3731   ·   registered: Feb. 1st, 2005
id 8667706
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tushnurse ( member #21101) posted at 1:10 PM on Wednesday, June 16th, 2021

Make sure you are staying hydrated and that you are pooping. I know it sound silly, but if you get constipated, from the pain meds, it will make you nauseated like you are. Getting the factory going so to speak can help.

Ask if you can alternate the pain meds with an NSAID like ibuprofen or aleve if you dont tolerate tylenol. If your Oxy has a 5/325 that 325 is tylenol/acetaminophen.

Me: FBSHim: FWSKids: 23 & 27 Married for 32 years now, was 16 at the time.D-Day Sept 26 2008R'd in about 2 years. Old Vet now.

posts: 20380   ·   registered: Oct. 1st, 2008   ·   location: St. Louis
id 8667751
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 Jeaniegirl (original poster member #6370) posted at 3:23 AM on Wednesday, June 23rd, 2021

MY Friends

I guess I have made it. The surgeon released me today back into the care of the lung doctor. I will be monitored for about a year with CT scans. I will also have to see the cardio doc about the A-fib issues as I'm still on meds for that. Surgeon says I am doing 'extremely well' and I told him I'd take his word on that. Still a lot of pain but it is because so many muscles and nerves were cut during surgery and it's just going to take time. Sometimes I feel as if my right breast is on fire, internally.

But I will make it. I was so glad again today to hear the worlds ....'cancer free' ..... so it's worth the pain to hear that.

Thank you all so much for all the mojo.

[This message edited by Jeaniegirl at 9:46 PM, June 22nd (Tuesday)]

"Because I deserve better"

posts: 3731   ·   registered: Feb. 1st, 2005
id 8669024
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