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SI Prayers/Mojo Request...Cancer

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lieshurt posted 10/21/2016 12:29 PM

Sending you lots of love DS & MH.
And on that note, who better than you guys to dedicate my 15,000 post to.

Love you bunches. (((DS & MH)))

sadcat posted 10/21/2016 17:57 PM

Go get 'em DS! Thinking of you and sending strength!

persevere posted 10/21/2016 19:36 PM

Shots of tequila and lots of love coming your way lady! To both DS and MH! <3

You are amazing in heart and soul - you got this. <3 :) And you have so much love behind you.

Hope24 posted 10/24/2016 20:00 PM

Thinking of you, dear DS.
❤️❤️❤️

Briseis posted 10/25/2016 08:05 AM

Hoping for all the good things . . . .

<3

sisoon posted 10/25/2016 09:42 AM

Still thinking of you, DS, and sending love and encouragement.

I can't imagine that an experimental treatment can be pleasant, but if it works, it'll be worth it.

(((DS))) (((DSMH)))

MissesJai posted 10/25/2016 17:36 PM

thinking of you and MH.... Love you tons....

atalosss posted 10/27/2016 22:55 PM

{{{DS}}} hope you are well 💕

NaiveAgain posted 10/28/2016 05:59 AM

(((((DS & MH))))

DragnHeart posted 10/28/2016 06:10 AM

Praying that both of you are doing ok.

Sending love and mojo.

((((((DS & MH)))))

Deeply Scared posted 10/30/2016 12:17 PM

I thought this would be a good time to do an update....its a long one.

I had my first round of the TD (Trial Drug) on Thursday, the 20th at the main MD Anderson campus. Overall, it's not much different than the first round of chemo back in May. MH and I had to wait ar least 4 hours for any type of reaction afterwards.

We went home that afternoon. On Friday, the 21st, we had to go back down to the main campus for lab work and my blood panel. Apparently my Creatinine numbers were high and indicating Renal failure with my kidneys. I was admitted into the ER right then and was up in a private room by dinner time. Poor MH...we had no idea I was even sick...I felt fine except my legs grew into trees trunks holding30 lbs of water I was retaining.

Saturday, the 22nd came and went and I layed in bed in excruciating pain that I was doped up for close to 48 hours. Monday came and I was still so much pain...I cried and cried and cried. Pool MH...he was so helpless and upset...so extremely worried about me.

One of my biggest fears on Sunday, the 23rd came true...I happened to lose the ability to urinate. My tumors had grown and started to press up against my urethra and pressing down on my bladder. I can't even describe the pain level. I felt like my guts were being pulled out and twisted around....absolutely no relief al all....just deep, to bone pain. I was called in surgery to install a catheter. Great

After surgery, more lab work had been ordered and now my heart rate was over 160 putting me in Afib ...all of this is happening so fast and medical teams in and out trying to sync pain meds, work my Afib issues, kidney failure and brand new catheter...still with me?

For the next few days the goal was to stabilize my pain level because it's nearly impossible to function. And it finally happened...after months and months of serious pain....not only have they reduced the amount of drugs
I have to take but have them synced perfectly so pain appears to be in the past..for most part. Knock off wood!!

MH brought me home on Friday, it is wonderful to become and surrounded by my friends and family and my stuff. I have been improving every day with strength and great attitude!! My neighbor loaned me her walker so I can move around our house with out fear of falling....which I did Friday and just about scared the shit out of poor MH.


So there is the most current update for you all, The prayers and cards and loving thoughts the have been sent us. Your generosity and love is amazing....truly.

While the tumors do appear to have gotten bigger,we are very hopeful with the new TD program I'm on.

AK 47 THIS SHIT!!!!!


traicionada posted 10/30/2016 12:31 PM

Lots and lots of prayers for you & MH

ZenMumWalking posted 10/30/2016 13:03 PM

Wow DS, what a scare!! I'm so very sorry that you have been in so much pain.

Fingers toes and everything else crossed, positive vibes, healing thoughts and tons more MOJO sent your way. I hope that together with TD and MH you will AK47 THAT SHIT and kick cancer's ass!!

FUCK CANCER.

((((DS & MH))))

WalkinOnEggshelz posted 10/30/2016 13:23 PM

I'm so relieved that the pain is subsiding. Soak in all that is good...MH, home, family, friends. You are loved, without doubt.

lieshurt posted 10/30/2016 13:45 PM

(((DS&MH))) So glad they were able to alleviate your pain. Continued prayers your way.

Catwoman posted 10/30/2016 13:49 PM

Continuing to pray and sending all possible healing thoughts. Sounds like you are getting the very best care available.

Love always,

Cat

minusone posted 10/30/2016 16:23 PM

((DS & MH)) sending lots of prayers and all good thoughts.

atalosss posted 10/30/2016 23:38 PM

Sounds so absolutely terrifying! You are a very strong woman, DS!

The biggest {{{hugs}}}

heforgotme posted 10/31/2016 00:50 AM

Wow, you are so brave.

I'm so glad they figured out how to get a handle on the pain.

I have immense respect and admiration for how you are fighting this.

xoxo

trying to smile posted 10/31/2016 02:08 AM

Thank goodness they managed to control your pain dear DS. Constantly sending love and positive energy across the miles.

tts

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