You may have read my post about my husband‘s recent hospital stay due to a serious UTI causing sepsis. Yesterday we had a follow up visit with his urologist. We came away feeling like we had been hit in the face with a 2 x 4.
Basically, he said that we are in a "no good solution" phase with my husband‘s health. Having had a spinal cord injury for close to 50 years now, he has experience… lots of experience…with urinary tract infections.
What this doctor is telling us now is that in the future, if my husband gets a urinary tract infection, we have a decision to make…
1) Take a sample to the doctor and get a culture done to identify the bacteria and treat with antibiotics, or
2) Do not treat.
If we choose number one and treat the infection with anabiotic‘s, we are setting up a situation where the bacteria will become resistant to the antibiotics, the more he takes. And he will eventually have a urinary tract infection that no anabiotic will treat, which will almost certainly cause his death.
If we choose number two and do not treat the infection… If we are unable to manage it and get rid of it without antibiotics, that very infection could also cost him his life.
We have been aware of these medical realities for sometime, but it seems as though we are getting closer and closer to one of these inevitabilities.
I guess the reason that it is really a bit of a smack in the face at this point, is that although the doctor did not say it in so many words, he kept apologizing. He kept saying that there are two choices that we can make, and that the outcome is the same whatever we choose. I got the impression that he was very concerned about the type and the amount of anabiotic that my husband was given in this last hospital stay. He seemed to think that this could be a fatal situation for my husband sooner than later.
I guess what I’m looking for is anyone who might have some information / suggestions about alternatives.
My husband and I have spent quite a lot of time with homeopathy/natural alternatives to different health issues. But after our children were mostly grown, and with less financial resources, we have mostly used modern medicine.
I give him probiotics, cranberry pills and vitamin C every day. I take amazingly special care in being as clean as possible without a surgical room when I use a catheter to empty his bladder.
I guess I’m looking for any type of thing… any advice that anyone might have regarding other things that we could do.
I have tried to google a specialist in treatment of patients who are many years post spinal cord injury, but I almost always end up with references to doctors who treat spinal cord injuries in the hospital immediately after the injury, or recently injured people. I can’t even figure out who to go see; a urologist, a physiatrist, or who?
I guess I am resistant to accepting this notion. As you probably can tell by my situation with my husband pertaining to what we have been through in our marriage, I really can’t believe that there is "nothing else that can be done". I have had instances in my life where that perspective did not serve me, and other situations where it has served me very well…the not giving up thing.
The urologist told us that he very much prefers to go the "no antibiotics" route. He says that we can take cultures to him to be tested, but that he really doesn’t want to test them because he "doesn’t want to know". I’m wasn’t sure what that meant, but a friend who is a nurse said that it basically means that since there is no real way to resolve the issue and the impact on his life…no matter which route we go… knowing what the bacteria is wouldn’t change anything.
My husband told me yesterday when we got home from the urologist appointment, that he wants to take the antibiotic route. I asked him if he understood that the next round of anabiotic’s that he takes could possibly cost him his life. He answered "Yes". After a 1 to 2 hour conversation, he held his stance. He was not emotional about it, and didn’t seem to be in denial about the situation. I even asked him, even if our son was not able to get out of jail, and therefore never able to see his dad again, would he still choose using antibiotics and risking resistance to the point of a costing him his life. "Yes". When I asked why he had arrived at that decision, without pause, he responded, "Quality of life." And in truth, either route we take could have the same result.
There is no doubt that whatever he decides while being clear minded, which he is at this time, I will totally implement if he’s unable to, whether or not I agree. I’m pretty sure he trusts that fact.
But in my mind I’m going back to the homeopathic doctor and to anything I can find that might help with the smaller urinary tract infections. The ones that would not take such dramatic antibiotics.
I’m just looking for something more. And this is such an invaluable site with people having so many experiences, I thought maybe I could find some help.
Respectfully I am requesting that my situation resulting in me being on this site, and comments I have made regarding troubles between my H and I, or things I have come here complaining about, not be discussed on this particular topic. This is simply a wife hoping for some kind of insight into something that I haven’t thought about yet, that could give us an upper hand in this horrible situation.
I request that it be truly "off topic".
Thanks so much.
[This message edited by WhatsRight at 2:52 PM, Wednesday, June 8th]