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Off Topic :
Trying to figure this out

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tushnurse ( member #21101) posted at 7:09 PM on Friday, August 5th, 2022

Awesome.

Just a thought. You all worked pretty dang hard to wean him off his narcotics. Now he has revisited how awesome they are how good they make him feel.

Do you feel that any of this related to his pain and screaming all night, it seems that was a behavior he had back when you were in the process of weaning off.

Does he need to see that pain dr again? Is this physical/mental withdrawal from the great stuff her was getting inpt?

I'm not saying he isn't having pain, between the gastroparesis, and the gal bladder issue, and nerve pain from his SCI I'm certain he has pain but the fact that it has ramped up so much seems awfully coincidental with getting the high dose stuff in hospital.

Me: FBS
Him: FWS
Kids: 22 & 25
Married for 30 years now, was 16 at the time.
D-Day Sept 26 2008
R'd in about 2 years. Old Vet now.

posts: 19420   ·   registered: Oct. 1st, 2008   ·   location: St. Louis
id 8748424
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 WhatsRight (original poster member #35417) posted at 8:26 PM on Friday, August 5th, 2022

Yes, I think it is related.

Two nights ago he wanted to go back to the ER. I ask him what could they possibly do that they didn’t do three nights ago before they discharged him. And he said, "they could give me something for pain".

I don’t believe he is "drug seeking" in the sense of being addicted again. But I do believe that after they gave him two units of morphine every two hours in the hospital, he has to have taken a step back in his progress away from those meds. I do have to say that there were several times when he turned down the morphine two or three times in a row. The last couple of days he was in the hospital he went for like 16 hours without any pain meds. So I think if he was back to where he was, he would be getting it every single chance he had.

That’s why I’m giving him tramadol. I do have hydrocodone 5/325, but I’m not giving them to him. Just the tramadol early in the evening. Last night I gave it to him as soon as he started really hurting. And he hurt for an hour or two and then it subsided. So that’s what I’m going to do between now and Tuesday. 🙏🙏🙏

If we go back to the neurologist regarding his pain… The one that put in the Neurostemulator… I guess he would just hook the neurostimulator up to another electrode connected to a different spot on his spinal cord. We are definitely down for that. But I do get the impression this is different.

I just hope and pray we will get some answers on Tuesday.

[This message edited by WhatsRight at 8:28 PM, Friday, August 5th]

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 7542   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8748436
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 WhatsRight (original poster member #35417) posted at 5:20 PM on Tuesday, August 9th, 2022

Gallbladder surgery next Tuesday.

👍🏼👍🏼👍🏼👍🏼

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 7542   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8749750
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tushnurse ( member #21101) posted at 5:55 PM on Tuesday, August 9th, 2022

Hopefully this will improve things for him.

Me: FBS
Him: FWS
Kids: 22 & 25
Married for 30 years now, was 16 at the time.
D-Day Sept 26 2008
R'd in about 2 years. Old Vet now.

posts: 19420   ·   registered: Oct. 1st, 2008   ·   location: St. Louis
id 8749753
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Jeaniegirl ( member #6370) posted at 9:09 PM on Tuesday, August 9th, 2022

I sure hope it helps! I had GB surgery and was back to work within 4 days but it wasn't invasive.

"Because I deserve better"

posts: 3236   ·   registered: Feb. 1st, 2005
id 8749783
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BearlyBreathing ( member #55075) posted at 9:33 PM on Tuesday, August 9th, 2022

Hurray! Glad it’s scheduled and hope it helps!

Me: BS 55 (49 on d-day)Him: WH. 64. D-Day 8/15/2016 LTA. Kinda liking my new life :-)

**horrible typist, lots of edits to correct. :-/ **

posts: 4886   ·   registered: Sep. 10th, 2016   ·   location: Northern CA
id 8749790
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 WhatsRight (original poster member #35417) posted at 8:28 PM on Wednesday, August 10th, 2022

So… Another urinary track infection.

His urine has become less crystal-clear over the last day or two, but this morning it was quite cloudy and had debris. Can’t remember if I shared before that the last time H was in the hospital with septic shock, I got a call from my PCP office sharing that the lab had called with a negative result for any bacteria in the urine sample I had given to them four days earlier. I explained to the nurse that was passing that information along to me, that he was presently in the hospital with SEPSIS because of the infection that WAS in the sample. She was pretty much horrified.

So this morning, I bagged a sample and then labeled it and headed to the urologist office about 20 minutes away. Arrived there just about one hour from the time that I had obtained the sample. Long long long story short, I called to ask if I should drop the sample off at the urologist office, or in the hospital lab attached to the office. She said it was too late. That they have to have urine within one hour unless it has been refrigerated. It was a horrifying conversation that I won’t bore you with, but I had to turn around and come back home.

The conversation on the phone with that nurse from the urologist office ended with me saying, "just never mind, you obviously don’t want to help me." And then I hung up. In about 15 minutes she called back. Over the period of two subsequent conversations she realized that I had a bit of an idea what I was talking about, that because my husband was in a lot of pain with his gallbladder issues that he could not accompany me to leave a specimen, and the trouble with the other lab that we had had, she began to backtrack and act as though she was going to do anything she could to help me.

Ultimately, she talked with the dr who said to just call in a prescription for Macrobid, for him to take in the meantime until we could get culture results. I ask her would that not put him at risk of developing resistant bacteria to the Macrobid, and wouldn’t that be harmful in the future, and therefore contraindicated if it was unnecessary. She said "uh, uh, uh, yes I guess it would." She also told me that if I would just bring another sample tomorrow morning, that she would put a "rush" on it. duh I told her that I was under the impression that a culture could not be rushed, that it had to be observed overtime to see what developed. She admitted that was true.

Anyway, tomorrow I will get my son to drop off the sample on his way to work… It is about 3 miles from where he works. I am also considering sending a sample off through my PCP, and get two results back… And compare them. ?

Meanwhile, H slept like a baby last night and is continuing to sleep today. He has not yet had uti symptoms like pain/burning in the bladder, fever, etc. The only thing that is concerning me right now, other than his urine, is that he isn’t eating. I think he is worried that if he eats, the bad stomach pain due to gallbladder will come back.

All of you who are medical professionals who have helped me through these hard times are so amazing to me, and I have the upmost respect for you.

But with many of the medical professionals I have dealt with recently, I have less and less respect for them. After I explained that my husband did not feel well enough to travel 20 minutes away in this heat to leave a specimen, she asked me..."Can he speak?" WTF does that have to do with ANYTHING??????

The thing that really is alarming to me about all of this, is that if I hadn’t been dealing with my husband’s health issues and continued to learn more and more as they arose, I would have believed that…for example...the nurse could put a rush on a culture, and so many other things.

I’m worried now, that with his recent history with sepsis, and if he does have a bad uti, they might postpone his gallbladder surgery.

When it rains, it pours.

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 7542   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8749926
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BearlyBreathing ( member #55075) posted at 9:08 PM on Wednesday, August 10th, 2022

Ugh. I am frustrated with you. So glad you know how to push when needed.
Fingers crossed for you…

Me: BS 55 (49 on d-day)Him: WH. 64. D-Day 8/15/2016 LTA. Kinda liking my new life :-)

**horrible typist, lots of edits to correct. :-/ **

posts: 4886   ·   registered: Sep. 10th, 2016   ·   location: Northern CA
id 8749937
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tushnurse ( member #21101) posted at 5:35 PM on Thursday, August 11th, 2022

First things first. Make sure you notify the surgeon that he was started on macrobid today so it won't cause a cancellation of surgery. Most surgeons are pretty unwilling to do surgery in someone w/ an active infection unless they have been treated for it for a period of time.

Second please keep in mind that the people you are speaking with at the offices, are not nurses. Many are medical assitants that is a 9 month training program vs 4 years of education. Often times the first person you are talking to on the phone when you call or meet at the front desk has zero medical training. So always ask to speak to the RN, or the specific physcians medical assistant.

Third, ask the urologist office to make a note in the chart that your spouse is a Para and has limited mobility that will get rid of the BS of making him come in for a UA.

4th if he isn't eating due to pain make sure he is drinking some protein shakes 2 a day will keep his protein levels at a healthy level and allow him to heal w/o problems from surgery.

Me: FBS
Him: FWS
Kids: 22 & 25
Married for 30 years now, was 16 at the time.
D-Day Sept 26 2008
R'd in about 2 years. Old Vet now.

posts: 19420   ·   registered: Oct. 1st, 2008   ·   location: St. Louis
id 8750020
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