Thanks for all the info y’all.
We are finally getting out on probation. I said probation because I worry that we might be right back. But I’m going to try to be positive.
They are taking one last lab to check sodium levels and then we’ll be gone. We will be out just in time to go to his last appointment with his PCP before the doctor retires. May his butt grow together!
I’ll definitely ask about the Crohn’s situation and see if that could be part of it. But I am thinking that it is more likely to be from the MiraLAX, LACTULOSE, Senna S, and Colace that they are giving him every day. I finally ask and they stopped the lactulose this morning.
I have 1 million questions for our primary care physician and I sure do hope that he has some answers. I finally did get out of the doctors that the Foley was for a month or two and then we would attempt straight cathing for a couple of weeks to see if that affected his blood pressure, and if so, then back to the Foley. If not, then we will go back to the intermittent cathing.
She won’t give him any pain meds to take home. That is problematic, because when he has one of his pain episodes, I’m not sure what to do. The pain is excruciating and he screams. That’s why we usually go to the ER. She did not want to send home any opioid product because it would cause the blood pressure to go too low and with the nitroglycerin and all the other stuff we’re trying to do, she doesn’t want to screw up the balance.
Hopefully the primary care physician can give us something.
Also, I’m going to call the neurologist who implanted his neurostimulator to see if he thinks it might be pain that could be regulated with another electrode in a different spot in his spine.
Never say never.
Again, thanks so much for all the help, And for hanging in there with me.
I guess this is it for the long long long, too long topic regarding our latest adventure. Hopefully, there won’t be anything else to report, and we won’t be back anytime soon!