How is everyone doing today???
So... my husband started getting “pain counseling“ yesterday. He spoke with a counselor about ways to engage a different part of his brain to offer distraction from focusing on pain. Playing challenging games on his tablet, or being with people, or watching certain TV programs… Ones that do not stress you out and that force your mind to engage.
He was initially “meh” about it. But afterwards, we went to the store to get a charging cable for his tablet that has been lost for some time. We have been having some trouble with the wheelchair lift on our van, but it did fine getting to the appt and leaving it. But, when we got out of the store, it was as if it was dead as 4 o’clock. So there we are, stranded at Walmart, and no way to get him in the van.
So we went inside and ate at the subway there. I called every supposedly wheelchair accessible taxi/transportation service in town, and - nothing. Even called my church to see if they had an accessible van that they could come and get us in. No.
But the very cool thing about this whole situation was that I kept making comments throughout every setback… “Well, this is a distraction!“, Referring to the suggestions that the pain counselor had made.I think my reaction to the whole situation… Not freaking out like I sometimes do… Was encouraging to him.
So we had nothing left to do but walk home with me pushing his wheelchair… Due to the fact that his brand new wheelchair that can go on its own with a small motor attached to it, has not been functioning properly. So I buy a coat at Walmart since I did not have one on, and we head out the door to start walking home. Not very far at all… Maybe a mile and a half to 2 miles.
My husband says, “Do you want to try it one last time?“. So I did, and low and behold it worked perfectly. I asked him if he wanted to trust it, because I was horrified at the thought that he might get halfway up the lift and it stop. It would have DEFINITELY been a distraction for us and for people seeing us on the road, for me to drive him home with him perched on the lift hanging out of the van halfway up! 🤣
Anyway, it all worked out fine… AND when we got home, he stayed up. 😳. I’m talking “up“ as in out of the bed. (He is in the bed 99% of the time now“) My sister came over and we made sausage balls, and I was cleaning house, and he was just up. Talking to us and watching TV with us. When he finally went to bed last night, he had been up for 14 hours. 🤗. He was in pain, but not so much that he asked to go to bed.
It will be a tough request, but I’m going to try my best to get him up today. If I can get him up every day for a week until he goes back to the pain counselor, maybe we will be over the “hump” of him being up more. In the morning, his pain was it a “5” out of 10. In the early afternoon it was up to a “six”, and up to a “7” by the time he went to bed. But most days he says it’s around and “8” all day long, so maybe this is going to help. 🤞🏽
Really hoping to hear from some of you about how you’re dealing with health and life and holidays. Hope everyone is doing as well as is possible.