Thanks, tushnurse! The world of medicine is so different now and I'm having trouble coping with it. So I appreciate you giving this your time and consideration because it's really hard to get any of my doctors to add up all the pieces and try to figure out if there's a correlation somewhere that points to a DX. They each have their own little niche and that's as far as they look. I had been frustrated before I was sick but it seemed better while I was in the hospital (LOVED the hospitalist doctor) but now I seem to be back to square one - take Claritin and see me in 4 months. I'm just not feeling right and 4 months is a long time to wait to see if Claritin helps my arm pain (total sarcasm).
However, you put 2 words out there that I did not want to see. Pulmonary and Hypertension. Both of my in-laws died from it and I do not want to have that! Nor do I want the interstitial lung disease. But if I have one of these conditions, I want to know it and I want to get my affairs in order. Not that I shouldn't do that at my age anyway but it adds a certain urgency to it all. Plus, if I have one of those, I'll quit looking at cruise and other travel websites and concentrate on closer to home. And if it's my time, it my time. But if it's not my time, daggummit, I want to quit wasting time feeling poorly and get on with living again.
I don't recall getting steroids but my DD mentioned them and I think some of my breathing treatments might have had steroids in them? So that probably explains the arm pain 100% and I thank you for making sense of it. It's not in my joints, though, it's definitely in the muscle (or tendon or ligament). However, I think you nailed it and there's something inflammatory going on because I noticed this morning that my arm pain seems to be related to holding my iPad when I'm lying in bed or sitting in my chair. So I will pursue that angle.
I can't tell about the weight gain, whether it's fluid or what but I've been monitoring my salt intake and never go above 1500 of my 2000 limit. They kept lecturing me about salt but I don't' use salt, I rarely eat out and I don't use a lot of prepared or frozen foods so going low salt has required absolutely no effort on my part. I left the hospital on Apr 20 with a script for 30 days of lasix and potassium but my PCP doesn't want to see me until June 8. I had a followup blood test Apr 27 and my potassium was high (slight) and my BUN and Creatinine were off. Doc said I was dehydrated, to halve the potassium for next 2 days and they'd see me in June.
And this is the new age of medicine. Big corporations running the show and all their minions follow certain protocols and forumlae and put on their blinders, don't complicate the issues by thinking and see 32 patients in 8 hours and so on. Gone are the days of getting to sit down and talk to your doctor or ask questions. I'm stymied here and while my pneumonia seems to be cured, there's still something wrong with me. Either it's gonna kill me soon so they're just avoiding that conversation or I'm just gonna slog on for the next 10 years, half alive - the anxiety from that is gonna do me in cuz I spent the last 10 years not caring if I lived or died and I worked so hard to want to be part of Life again and now this?
And the worst part of it? The very, very, very worst? I get lifetime spousal support and I am horrified to think that he'll start having extra money to live the high life with the Bimbo. I'm mostly indifferent to the XWH and his whatever but the money part still stings big time.
More meandering thoughts (more like ranting):
Humana keeps calling me to schedule an in-home visit by a nurse. I've done it the past 3 years and it's such a waste of time in my case because I get all the recommended tests, exams and immunizations, etc. Every year they hard sell me on it by saying the nurse will sit down and discuss all my concerns and collect all my information about my tests and immunizations, etc. They already have all that and if they don't, I can print off a copy of MYChart for them. (Which is full of erroneous information that a clerk in a doctor's office put in and I can't seem to get resolved but hey, once it's in your chart, it's gospel. When I had my stress test, the doctor ordered the chemical one because of my "scoliosis." News to me but hey, it's in my chart so it must be true.) Humana routinely turns down my medications and suggests substitutions that are so far off the mark that it should be criminal on their part to make these suggestions without knowing the medical reason a person is taking the medication. If I thought for one minute the nurse would sit down and talk to me about all the things that are bothering me and look at my blood tests and all the other tests I've undergone and try to put the pieces of the puzzle together, I'd do it in a heartbeat. But I've already done it so many times and ended so frustrated in the end that I'm refusing to do it again.
The medication part of my hospital stay was very frustrating but I won't get into that other than to say, again, NO ONE LISTENS! But they cured my pneumonia so I'm not going to focus on their inability to understand I don't need my Vyvanse while I'm lying in a hospital bed and no, I'm not going to take Melatonin, I have sleep apnea and melatonin is a no-no for me as well as the fact that it's an unregulated supplement and they can hand me a capsule and tell me it's Xmg of melatonin but the truth is, none of us knows what's really in that capsule. We danced that dance every night which was comical because they came in my room at least once an hour to do something, a breathing treatment, take blood, check vitals, etc. Don't get me wrong, I was glad for the company cuz I was pretty sick and couldn't sleep anyway and everyone was very kind and very nice. The funnest part was getting a new IV put in; went through that 5 times and they finally had a specialist come in from Orlando to insert a midline. That also failed but by then, I was ready to go home so they just quit poking me anymore. However, what none of them ever did, in spite of my requests, was to get me set up with a CPAP. The other thing no one did, in spite of my frequent requests, was to notify my pulmonologist I was there and wanted to see him (he was on duty as the ICU doctor in the hospital that week). My cardiologist was the one who finally told him I was there and wanted to see him.
I will say I can definitely tell the difference now that my oxygen is staying at 95/96 compared to the 91/92 readings I'd been having for the last few years. One of my biggest complaints of the past several years has been hypersomnia and even Provigil, Nuvigil, Dextra-amphetamine, Vyvanse and <expensive one I can't remember name of> didn't help me. I had televisit with my psychiatrist (I live in FL and have to use a psychiatrist for any control substance drugs and I've tried a variety of anti-depressants, stimulants and sleeping pills during the last 6 years, none of which seemed to help me much) the other day and she said at least it makes more sense now why nothing was helping me - none of those medications can oxygenate my brain. Problem now is, my brain is working and has lots of ideas and plans but the body isn't cooperating.
Sorry, this turned into more of a journal!